Here's another Colton update as we continue to make leaps and bounds progress in understanding what is bothering him and small baby steps in improving his quality of life. First of all he is the happiest most content little guy you will ever meet especially considering all he has been through. Nutritionist wants us to gain more weight as he is on the small size and his head is normal size for his age and takes up a 1/4 of his body weight. He weighed in at 12lbs 10oz today and 23.1in long at 4months and 1.5 weeks old. Over the past few weeks I finally realized he was having the congestion due to the possibility of having a milk protein allergy. I began giving him Nutramigen a hypoallergenic formula made by enfamil and it helped his nose but seemed to upset his tummy and he didn't like it much either. So back to Gentlease we went. Now we are trying the Alimentum same thing but by Similac as the nutritionist told me it is better tasting and better tolerated. Of course if it does work we have to convince WIC to let us use it as they are pushing Enfamil products.
During examination we discovered that a lot of the muscles in his body are very tense including his cheeks and tongue. I have to massage his cheeks in a C shaped manner 5 times 3x a day to help loosen them up...I always thought they felt swollen and they are just extremely thick just like his tongue. All of these things should help his eating abilities improve drastically though I have to add he has done a really good job eating baby food so far.
VATER Association is an acronym being used to describe the many anamolies we are dealing with. It covers the heart problems, lack of an anus, thyroid and acid reflux along with urinary tract and many more.
We have his 4 month check up in the morning with the pediatrician so that I can up date him with progress and see what the next step is.
